Adrenoleukodystrophy (ALD) Support
Support group connecting families affected by Adrenoleukodystrophy (ALD).
A Mother's Quest: BAHBAD.Org
OC mother Gina Cousineau and her daughter Mary, share the journey they were taken on as they fought for son/brother Evan's life when he was diagnosed on May 1, 2007 with a metabolic genetic disease called Adrenoleukodystrophy. Though they lost Evan due to complication to his double cord blood transplant, they now give HOPE to patients in need by educating, raising awareness and providing opportunities for donation of all capacities. Visit their website at BAHBAD.org
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Comment by Michelle Horak on March 10, 2010 at 7:54pm -
What a bittersweet story... Gina and Mary you are an inspiration to others.
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