Adrenoleukodystrophy (ALD) Support

Social Security Adds Neonatal ALD to List of Compassionate Allowance Conditions

Social Security Adds 38 New Compassionate Allowance Conditions

Michael J. Astrue, Commissioner of Social Security, today announced that the agency is adding 38 more conditions to its list of Compassionate Allowances. This is the first expansion since the original list of 50 conditions - 25 rare diseases and 25 cancers - was announced in October 2008. The new conditions range from adult brain disorders to rare diseases that primarily affect children. The complete list of the new Compassionate Allowance conditions is attached.“The addition of these new conditions expands the scope of Compassionate Allowances to a broader subgroup of conditions like early-onset Alzheimer’s disease,” Commissioner Astrue said. “The expansion we are announcing today means tens of thousands of Americans with devastating disabilities will now get approved for benefits in a matter of days rather than months and years.”Compassionate Allowances are a way of quickly identifying diseases and other medical conditions that clearly qualify for Social Security and Supplemental Security Income disability benefits. It allows the agency to electronically target and make speedy decisions for the most obviously disabled individuals. In developing the expanded list of conditions, Social Security held public hearings and worked closely with the National Institutes of Health, the Alzheimer’s Association, the National Organization for Rare Disorders, and other groups.

#25. Neonatal Adrenoleukodystrophy

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Tags: disability, neonatal, security, social, ssa

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Comment by brenda jones on September 24, 2010 at 4:23am
i wish there was a similar programme here in the uk. My nephew despite being unable to walk has been told he is not disabled enough to claim disability living allowance, he has had to give up his job, and is in danger of losing his home, these decisions are made my non medical civil servants, they have not even seen him or had him assessed by a doctor. it makes me so mad.

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