Adrenoleukodystrophy (ALD) Support

Support group connecting families affected by Adrenoleukodystrophy (ALD).

Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and dates for meetups in other cities around the world.

 

Creating Groups:
Create a group within the patient community. To make the group easier to be searched, don't forget to include your CITY or REGION name in the title of your group.

 

Organizing Meet-up:
Within your created group, you can add a discussion forum to talk about meet-ups following these tips:
1. Pick a date (Saturdays are best)
2. Pick a place (picnics at a park for example)
3. Post an event here
4. Contact a moderator to help spread the word.

 

Ben

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