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140+ members, let's get to know each otherHi all, My name is Michele and my two sons were diagnosed with ALD in April of 2010. I found this support group back then; however, a co… Started by Michele Birrittieri in General DiscussionsLatest Reply |
Lorenzo's Oil Study Support on FacebookFYI: For those of you who have sons currently enrolled in the Lorenzo's Oil Study at Kennedy Krieger, there is a Facebook group you can jo… Started by princessdi in General DiscussionsLatest Reply |
'Amble for ALD' fundraiser. Please join in and raise funds for ALD researchHi everyone I recently posted an event for the 10th of September this year to raise money for research in to ALD. I represent the uk based… Started by mark bostock in General DiscussionsLatest Reply |
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Moderator How To Make Our Community Easier to FindA member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by l… Started by Ben Munoz in General DiscussionsLatest Reply |
ALD families unite.Janis is on a quest.Janis will not leave her post until she gets media attention. Please visit the link, RSVP ATTENDING to the invite -- th… Started by jamie barlow in General DiscussionsLatest Reply |
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Moderator New Member IntroductionsSome information for new members on how to help yourself and how to help others is here:http://www.aldsupport.org/page/how-to-help In this… Started by Ben Munoz in General DiscussionsLatest Reply |
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