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Featured Discussions (6)

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Featured Discussions

140+ members, let's get to know each other

Hi all,   My name is Michele and my two sons were diagnosed with ALD in April of 2010.  I found this support group back then; however, a co…

Started by Michele Birrittieri in General DiscussionsLatest Reply

Lorenzo's Oil Study Support on Facebook

FYI:  For those of you who have sons currently enrolled in the Lorenzo's Oil Study at Kennedy Krieger, there is a Facebook group you can jo…

Started by princessdi in General DiscussionsLatest Reply

'Amble for ALD' fundraiser. Please join in and raise funds for ALD research

Hi everyone I recently posted an event for the 10th of September this year to raise money for research in to ALD. I represent the uk based…

Started by mark bostock in General DiscussionsLatest Reply


Moderator

How To Make Our Community Easier to Find

A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by l…

Started by Ben Munoz in General DiscussionsLatest Reply

ALD families unite.

Janis is on a quest.Janis will not leave her post until she gets media attention. Please visit the link, RSVP ATTENDING to the invite -- th…

Started by jamie barlow in General DiscussionsLatest Reply


Moderator

New Member Introductions

Some information for new members on how to help yourself and how to help others is here:http://www.aldsupport.org/page/how-to-help In this…

Started by Ben Munoz in General DiscussionsLatest Reply

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