Adrenoleukodystrophy (ALD) Support
Support group connecting families affected by Adrenoleukodystrophy (ALD).
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Photos
Videos
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Lorenzo's Legacy
Added by Darlene Halverson
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Mission Awareness
Added by Darlene Halverson
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Mission Awareness # 2
Added by Darlene Halverson
Please Be Kind & Use Appropriate Language
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.
Forum
How to Create Group and Organize A Meetup in Your City
Started by Ben Munoz in General Discussions Dec 16, 2011.
140+ members, let's get to know each other 13 Replies
Started by Michele Birrittieri in General Discussions. Last reply by Mitali Dec 9, 2011.
pregnancy 1 Reply
Started by Niamh in General Discussions. Last reply by Mitzyjane Nov 28, 2011.
Welcome to ALDSupport.org: Connecting families affected by Adrenoleukodystrophy
What can you do on ALDSupport.org?
1. Share your story on "My Page"
2. Start a new discussion on "Forum"
3. Welcome new members with a comment on their page
*Please keep in mind we are not doctors and don't treat ALD. We are here for comfort and support. You should be consulting a doctor for treatment and advice.
Latest Activity
Blog Posts
January 2012 Community Newsletter
Posted by Ben Munoz on January 25, 2012 at 10:00am
January 2012 Community Newsletter
Posted by Ben Munoz on January 25, 2012 at 10:00am
December 2011 Community Newsletter
Posted by Ben Munoz on December 19, 2011 at 5:28pm
Our Story
Posted by Darlene Halverson on October 5, 2011 at 9:30am
ALD WARRIORS
Posted by Darlene Halverson on October 4, 2011 at 8:12pm
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Zack and the Dragon
12 Jan 2012—ALDSupport—Zack and the DragonHow I Live With Ataxia
23 Dec 2011—LivingWithAtaxia—How I Live With AtaxiaBeing a Part of the LifeWithLupus.org Family
01 Dec 2011—LifewithLupus—Being a Part of the LifeWithLupus.org FamilyWhat is Best of Ben's Friends?
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Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Awards
Groups
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Friends and Family Affec…
1 member
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The Blue Ribbon Sisterho…
2 members
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Moderator Group
3 members
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CHILDREN WITH ALD
2 members
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MUSICAL DEDICATIONS
1 member
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© 2012 Created by Ben Munoz.
