Welcome to ALDSupport.org. Were glad you found the site. The purpose of this community is for families affected with adrenoleukodystrophy (ALD/AMN) to provide each other with emotional support.

If you are looking for information about adrenoleukodystrophy (ALD), we recommend WebMD. If you are looking to promote awareness or donate for a cure, we recommend ALD Foundation, ALD Life, or FightALD.org. A directory of resources about ALD is available on Organized Wisdom.

What can you do on ALDSupport.org?
1. Share your story on "My Page"
2. Start a new discussion on "Forum"
3. Welcome new members with a comment on their page

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Adrenoleukodystrophy (ALD) (also known as "Addison-Schilder Disease," "Siemerling-Creutzfeldt Disease," and "Schilder's disease"[1]:545) is a rare, inherited disorder that leads to progressive brain damage, failure of the adrenal glands and eventually death. Adrenoleukodystrophy is one disease in a group of inherited disorders called leukodystrophies.

There are several different types of the disease which can be inherited, but the most common form is an X-linked condition. Patients with X-linked ALD are all male, but about one in five women with the disease gene develop some symptoms. Adrenomyeloneuropathy is a less-severe form of ALD, with onset of symptoms occurring in adolescence or adulthood. This milder form does not include cerebral involvement, and should be included in the differential diagnosis of all males with adrenal insufficiency.